Emergency$8,135
of $45,000
Don't let Sasha miss her chance.
๐๐ OUR DAUGHTER WAS SLOWLY DYING OF HUNGERโฆ ๐ญ Sasha was born in December 2020 in Rostov-on-Don. At first glance, she was a perfectly healthy baby... But on the 10th day of life, her body stopped absorbing nutrition. Dehydration set in... ๐ข





we were given a document with an extremely poor prognosis and prescribed conditions under which our five-year-old Sasha would not be resuscitated. Instead of further treatment, we were offered palliative care; we were effectively told to prepare for the worst.
At first, doctors said it was "temporary." But it only got worse. Symptoms of intestinal obstruction appeared , food wouldn't digest, and she wasn't gaining weight. Then Sasha began losing weight rapidly ... ๐
We visited every doctor in Rostov, took ambulances to hospitals, and underwent tests... But no one could figure out what was happening . Our child was literally melting away before our eyes ... ๐ญ
We went to Moscow. There they diagnosed herโฆ which turned out to be wrong . Sasha spent six months receiving treatment for the wrong illness .
She could only eat blended buckwheat and turkey . Any other food caused severe cramping and obstruction symptomsโฆ ๐ข
Then more hospitals, tests, new diagnosesโand more mistakes . Ultimately, Sasha was given a central venous catheter to feed her intravenously โฆ ๐
But even this did not help her grow .
In the summer of 2024, she suffered a severe attack of colitis. Fecal impaction, intoxication, severe pain . Sasha couldn't go to the bathroom and lost weight again... ๐๐ญ
We went to dozens of doctors, federal centers, geneticists, immunologists... No one could help .
To save our child, we sold our apartment and went to Israel...
There the doctors immediately found the cause.
Sasha's colon barely functions . Food doesn't pass through. Her body can't digest food.
Diagnosis: desmosis coli .
To save her life, they urgently performed surgery and created an ileostomy .
Sasha is now 5 years old , but she weighs only 9.5 kg ... That's the weight of a two-year-old child... ๐ญ๐
She has a long and difficult journey ahead of her: - learning to eat again - giving up intravenous feeding - gaining weight - getting her bowels working again
Only then will doctors be able to decide whether the intestine can be saved or whether it will have to be removed completely .
We went through years of pain, dozens of hospitals and operations. We sold everything we had .
But we can't lose our daughter... ๐ญ๐
๐ Please help save Sasha. She really wants to liveโฆ ๐๐๐ญ
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